Advertisement

Epilepsy Alliance Louisiana


When it comes to living with epilepsy, there’s no one age group that it affects. Epilepsy is a neurological disorder that people of all ages can experience. According to the national Epilepsy Foundation, it is a spectrum condition and is typically diagnosed when a person has “two unprovoked seizures (or one unprovoked seizure with the likelihood of more) that were not caused by some known and reversible medical condition like alcohol withdrawal or extremely low blood sugar.” People with epilepsy face not only the difficulties that arise with the condition but also a public misunderstanding about the disorder.

In 1977, the Epilepsy Alliance of Louisiana was founded. It has since joined six other organizations across the nation to form Epilepsy Alliance America. Together, these groups work to provide resources and support for people with epilepsy and their caregivers.

Julie Martin was named Executive Director in April 2019. By overseeing the organization’s many services, Martin hopes to better reach the Louisiana epilepsy community. Epilepsy Alliance Louisiana has three full-time staff and two part-time staff spread across the state to get information out about events and provide resources statewide.

“There are about 54,900 people diagnosed with epilepsy in Louisiana,” Martin says. “We want to reach out to all 54,900 people and let them know they’re not alone and that we have resources for them. I’m very lucky to work with such dedicated people.”
 
Some of the services Epilepsy Alliance Louisiana provides are case management, Q+A clinics, and emergency training. When a person with epilepsy or his or her caregiver encounters a problem, he or she can call the organization to speak with a case manager. The case manager answers a number of questions ranging from issues with insurance to obtaining training. Sometimes, the case manager refers the caller to state resources for better help.

Epilepsy Alliance Louisiana currently provides Q+A clinic sessions in Baton Rouge, New Orleans, Shreveport, and Covington. At these events, guests learn from a guest speaker who is knowledgeable about epilepsy. These clinics are free and allow the epilepsy community to receive valuable information straight from the source. In Baton Rouge, these clinics are held at the Main Library.

Epilepsy Alliance Louisiana is entirely funded through donors, state grants, and fundraising events. The organization’s biggest events are Seats for Seizures and Seize the Day 5K. At Seats for Seizures, on November 10, guests can purchase seats at a table for a gala filled with games, a live auction, and guest speakers. The Seize the Day 5K offers food, drinks, and a live band. The events help raise funds to continue its mission.

Martin says the best part of her job is connecting with families. Her husband was diagnosed with epilepsy, so she understands. “Getting a diagnosis can be very scary and you can feel like you’re the only one,” she says. “I go to most of our clinics and Q+A sessions every week, so seeing families light up when they realize they’re not alone is the best part of my job.”

Be the first to review this item!


Bookmark this

31 Oct 2019


By Madeline Rathle

Recent Articles more articles

Summer is Coming

in A Day in the Life of Dad

Alright, here is the warning shot with a twist for all my Game of Thrones fans, SUMMER IS COMING. We must get ready. What does that mean? Well, I–being the optimist I am–believe we will be back to a much closer-to-normal summer than last year, with s

The Camp Next Door: 5 Skills Campers Gain

in Things To Do, Family Life, Summer Fun

Many parents want their kids to experience summer camps, but the idea of spending several nights away from home is a little scary for both the parent and the child. A great alternative, especially for younger kids, is to send them to day camp. Day ca

Don’t Get Caught in an Itchy Situation: The No-Panic Parent’s Guide to Lice

in Health and Wellness, Family Life

One of the lessons that parents try to teach their children is the importance of sharing with each other. Whether it be their snacks, their thoughts, and occasionally, even their toys, parents know that sharing is an important lesson for children to

Surviving Spring Sports: A Parent’s Guide

in Things To Do, Family Life, Summer Fun

As the older sister of a lifelong baseball player, I spent many hours at the ballpark. When it came time to sign my son up for spring T-Ball, I wasn’t worried–I had been living the baseball mom life for years! I was way ahead of the game.

Featured Listings more listings

Adventures in Bouncing

Adventures in Bouncing

in Party Entertainment

With Adventures in Bouncing, they will bring the fun to you! Adventures in Bouncing provides bounce houses and water slide and combo rentals that can be delivered right to your event. Rent for the day or keep it overnight. Let us make your event the

Walkie-Chalk

in Things We Love

Create big sidewalk chalk masterpieces without crouching down with Walkie-Chalk. You can stand up and draw with this adjustable marking stick that also comes apart and is easy to store.

Elementary Pathways

Elementary Pathways

in Day Camps

Parkview Baptist School; Grades: 1st - 4th; Dates: TBA; Rates: TBA

Advertisement
Newsletter